Well I’ve been tested for celiacs a bunch. Blood tests and even an upper GI endoscopy (prolly one of the worst medical procedures I’ve had and I’ve had a bunch, you’re forced to deepthroat an endoscope so that they can go from your mouth to your small intestine and grab a sample), my villi don’t show signs of coeliac damage.
But yeah, my poop does float whenever I have gluten in my diet, which is why I’m now without it. Also milk proteins seem to have an effect. But goddamn leaving gluten has been a somewhat challenge, not to mention how hard it is if I can’t have any nice yoghurt (Greek or Turkish mainly) or cheeses.
But yeah I told healthcare about my poop consistently being yellow/orange and floating and I even have photos from almost a year of me following it. Nah they just dismissed me said “it’s probably just air trapped in your poop”. Sure, yeah, except I’ve also considered that and the photos clearly show that’s not the case. They don’t care. Just do whatever is the easiest for them no matter how it affects me.
Youve prob tried everything but have you tried modafinil, was hyped up as a limitless pill (is nowhere near it ofch) but you dont feel sleepy on it and thats what the army uses it for or used it for at some point.
I can vouch that it works, doesnt feel like a stimulant like adderal or energy drinks, just don’t feel sleepy yet can sleep if you choose to.
I haven’t tried modafinil no. Should give it a whack if any comes available. I used to have a classmate who was on it but that was 10+ year’s ago and I didn’t really know him.
What actually worked best was the very plain diet but I just… it’s just so boring eating nothing but rice and gluten free fish sticks. But then I started to be able to just easily sleep 6 hours and get up. Felt like a real person. Because genuinely oftentimes if I try to get up but haven’t gotten enough rest, I’ll be worse off than when I’ve had a bottle of rum. Like my eyes won’t go straight and I can’t really get up properly.
Although I have to admit that some of these later long sleeps have been contributed to by the new meds I got for a broken rib, amitriptyline or the like. But it’s alaovi used for IBS and depression, and neither of those are going amiss for me basically.
But man it’s tiring. Idk how that would help anyone with depression. I mean yeah I care less about being tired and am not as annoyed about sleeping more than half the day but I don’t feel like it’s really helped my depression at all if it keeps me asleep for more than half the day.
But even without it I have issues. And I open curtains and have automatic lights to come on full at a decent wakeup time.
But yeah I could give modafinil a whack if i had some idk. But I think I’ll just have to to back to rice/fish/potatoes/chicken diet.
Yeah luckily I don’t have it quite that bad, (especially after I went on an exclusion diet and slowly added things to a really plain diet and sort of figured a bit what works what doesn’t) but, yes, I definitely agree with you. Not fun.
I’d rather be fat and jolly than slim and super cranky from constantly being in some weird state of mild starvation. But it’s so mild and I make sure to supplement vitamins and whatnot so none of my basic lab-work is showing anything too far out of the ordinary, so the busy public doctors can’t be bothered to look into it since to them everything seems fine. Even when I can show them almost a years worth of literally shit pics, me having taken photographs of my stinky and floating orange poo. (I sent them to a spam-email I have so I don’t have to keep them in my phone’s gallery.)
I had a massive infection when I was that. It wasn’t just the malabsorption with me, but doctors insist you can only have one health problem at a time. I’m down to 3500 now and maintaining a healthy weight, so 👍
I don’t want to practice medicine online, but if I had started smoking weed I’d middle school I’d have way more organs than I do now. There’s some small literature about it but Jennifer refuses to publish. Thinks she has to wait until I’m dead and we have had that problem before.
I started smoking weed about around 16 or 18. Not often. But pretty daily from my mid 20’s at least. Definitely helps with eating and nausea or gi-pain. (Sitting on the toilet for an hour or two is much easier when you also have a bong and a phone with you.)
I don’t have a lot of infections and am generally “within normal parameters” as like you say, the doctors can only think there’s a single problem at a time. And at least here I always get a new doctor for most visits and I get like 30 min meeting every blue moon.
The public doctors kinda suck for complex, chronic issues. And I can’t afford private ones to that extent.
I don’t think my malabsorption is quite as bad as yours, but then I also randomly get seizures, to which I’ve gotten zero explanations for. Tested for epilepsy and had and MRI and whatnot, but nothing. But since Finland is kinda backwards when it comes to cannabis, they blamed it on my “drug use”. (Even though I have high CBD strains and they’re literally anti-convulsants to a degree iirc.)
Jokes on you I got some sort of undiagnosed malabsorption issues and won’t get fat even when I eat burgers and candy and alcohol day after day.
Coeliac disease? Does your poop float?
Well I’ve been tested for celiacs a bunch. Blood tests and even an upper GI endoscopy (prolly one of the worst medical procedures I’ve had and I’ve had a bunch, you’re forced to deepthroat an endoscope so that they can go from your mouth to your small intestine and grab a sample), my villi don’t show signs of coeliac damage.
But yeah, my poop does float whenever I have gluten in my diet, which is why I’m now without it. Also milk proteins seem to have an effect. But goddamn leaving gluten has been a somewhat challenge, not to mention how hard it is if I can’t have any nice yoghurt (Greek or Turkish mainly) or cheeses.
But yeah I told healthcare about my poop consistently being yellow/orange and floating and I even have photos from almost a year of me following it. Nah they just dismissed me said “it’s probably just air trapped in your poop”. Sure, yeah, except I’ve also considered that and the photos clearly show that’s not the case. They don’t care. Just do whatever is the easiest for them no matter how it affects me.
That sounds like a very expensive chronic issue.
Nice superpower.
Sort of and also not. Not getting energy from food also means I have no energy for you know, existing.
So while I might not need to worry about getting fat, I’ve also nowhere to display not being fat.
I tend to sleep quite a lot.
Youve prob tried everything but have you tried modafinil, was hyped up as a limitless pill (is nowhere near it ofch) but you dont feel sleepy on it and thats what the army uses it for or used it for at some point.
I can vouch that it works, doesnt feel like a stimulant like adderal or energy drinks, just don’t feel sleepy yet can sleep if you choose to.
I haven’t tried modafinil no. Should give it a whack if any comes available. I used to have a classmate who was on it but that was 10+ year’s ago and I didn’t really know him.
What actually worked best was the very plain diet but I just… it’s just so boring eating nothing but rice and gluten free fish sticks. But then I started to be able to just easily sleep 6 hours and get up. Felt like a real person. Because genuinely oftentimes if I try to get up but haven’t gotten enough rest, I’ll be worse off than when I’ve had a bottle of rum. Like my eyes won’t go straight and I can’t really get up properly.
Although I have to admit that some of these later long sleeps have been contributed to by the new meds I got for a broken rib, amitriptyline or the like. But it’s alaovi used for IBS and depression, and neither of those are going amiss for me basically.
But man it’s tiring. Idk how that would help anyone with depression. I mean yeah I care less about being tired and am not as annoyed about sleeping more than half the day but I don’t feel like it’s really helped my depression at all if it keeps me asleep for more than half the day.
But even without it I have issues. And I open curtains and have automatic lights to come on full at a decent wakeup time.
But yeah I could give modafinil a whack if i had some idk. But I think I’ll just have to to back to rice/fish/potatoes/chicken diet.
no no it is not.
being a bag of skeletons that do not like each other, eating 5000 calories a day and losing weight, that is not fun.
Yeah luckily I don’t have it quite that bad, (especially after I went on an exclusion diet and slowly added things to a really plain diet and sort of figured a bit what works what doesn’t) but, yes, I definitely agree with you. Not fun.
I’d rather be fat and jolly than slim and super cranky from constantly being in some weird state of mild starvation. But it’s so mild and I make sure to supplement vitamins and whatnot so none of my basic lab-work is showing anything too far out of the ordinary, so the busy public doctors can’t be bothered to look into it since to them everything seems fine. Even when I can show them almost a years worth of literally shit pics, me having taken photographs of my stinky and floating orange poo. (I sent them to a spam-email I have so I don’t have to keep them in my phone’s gallery.)
I had a massive infection when I was that. It wasn’t just the malabsorption with me, but doctors insist you can only have one health problem at a time. I’m down to 3500 now and maintaining a healthy weight, so 👍
I don’t want to practice medicine online, but if I had started smoking weed I’d middle school I’d have way more organs than I do now. There’s some small literature about it but Jennifer refuses to publish. Thinks she has to wait until I’m dead and we have had that problem before.
I started smoking weed about around 16 or 18. Not often. But pretty daily from my mid 20’s at least. Definitely helps with eating and nausea or gi-pain. (Sitting on the toilet for an hour or two is much easier when you also have a bong and a phone with you.)
I don’t have a lot of infections and am generally “within normal parameters” as like you say, the doctors can only think there’s a single problem at a time. And at least here I always get a new doctor for most visits and I get like 30 min meeting every blue moon.
The public doctors kinda suck for complex, chronic issues. And I can’t afford private ones to that extent.
I don’t think my malabsorption is quite as bad as yours, but then I also randomly get seizures, to which I’ve gotten zero explanations for. Tested for epilepsy and had and MRI and whatnot, but nothing. But since Finland is kinda backwards when it comes to cannabis, they blamed it on my “drug use”. (Even though I have high CBD strains and they’re literally anti-convulsants to a degree iirc.)
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