• Lumisal@lemmy.world
    link
    fedilink
    arrow-up
    10
    arrow-down
    1
    ·
    1 year ago

    Hi there. Had kidney failure for about 8 years.

    There was this one medication I badly needed to control secondary hyperparathyroidism. Literally used all avenues, and couldn’t get it approved or covered, other than by paying around 800$ for a single dose. I even had private insurance still at the time btw. The alternative was a surgery to remove a parathyroid gland which would then lead me to having other severe health complications if I got a kidney transplant. You know, due to now missing an organ.

    Second treatment in Finland when I was just VISITING, not even a resident yet - "oh, you’re PTH levels are extremely high. We’re going to give you “medicine I’ve been trying to get for months”.

    Just like that. No struggle even. Cost? 25$, and that includes the superior diafiltration treatment (USA only has dialysis, despite it giving poorer quality of life and lowering life expectancy, thanks to lobbying from DaVita.

    Anyway, fuck you 🙂

    • Alex@feddit.ro
      link
      fedilink
      arrow-up
      2
      ·
      1 year ago

      I’m really sorry you had to go through all of that, but it’s great that you finally managed to get the treatment you needed.

      • Lumisal@lemmy.world
        link
        fedilink
        arrow-up
        1
        ·
        1 year ago

        Less sick than if I had been in the USA 🙃

        Less dead, too.

        Hopefully you don’t end up in my situation. Or maybe it’s better you do 🤷🏻‍♂️